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TO LOVE A SERIOUSLY ILL CHILD

April 18, 2020

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About The Blog

Rconciphotography.com is a platform where I share my personal imagery and life as a wife and mother with three beautiful daughters.  Two of whom have a debilitating disease not seen anywhere else in the world. I provide inspiration, information and help for families who have been given the role to raise very sick kids.

June 22, 2020

As I started my journey to live a more intentional life, I quickly realised that to make the most of my days I needed to start the day with what felt like a small step in front.  When times and seasons provide chaos around me, there are things that I can control to hel...

June 12, 2020

For 12 years I have been administering medication for my children.  There have been seasons where one or two medications were only needed.  Seasons where all the medication administered would need to be liquids to dispense through nose tubes or gastrostomy tubes.   And...

May 20, 2020

Our family in a hospital room

Helping a family that spends a lot of time in hospital can be difficult.  We have spent months in hospital, and have come home from hospital so many times.  I know that people struggle with how to help families like ours, so from my experie...

May 20, 2020

Award winning image for the 2020 Portrait Masters                                 When I was 9, Rebecca Conci, 2015 

When I fell pregnant with my first baby girl I was filled with anticipati...

May 20, 2020

In ICU after haemorrhaging on the operating table, she then became the sickest child in Aus/ NZ waiting for a liver, and went to the top of the transplant list.

No one could ever wish for their child to be seriously ill.  

Watching as their fragile body slowly start...

April 18, 2020

 My Fighter

As I have held two of my three girls' hands in ICU, whilst they each fought for their lives I love them.  I love them so much it makes all else disappear. I love every part of them so much it hurts.

Coming close to losing a child is one of the most painful of...

April 18, 2020

There is a saying that ‘life passes you by while you are busy making other plans’. Building for the next step, and being so focused on what that next step might bring. In the meantime life is happening all around you. Having a seriously ill child makes you stop and see...

April 17, 2020

I am very aware of the extra appointments we sustain for our chronically ill children.  There is a huge difference in the organising, and record keeping that goes into managing a chronically ill child, than a child who is well and healthy.  Our 7-year-old has never bee...

April 16, 2020

Watching the sun rise on the most eastern point of Australia

Having chronically ill children means just that.  It is ongoing, relentless.  Losing your identity to motherhood can be hard, but even more so when you have one, two or more children who are chronically ill....

April 8, 2020

                   In ICU with one of my beautiful girls

Mother guilt is one of those things that can touch each of us at some point.  All of us feel it for different reasons, or can relate to it. But can you imagine the weig...

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